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Comments from internal events 23 April 2019 - 28 May 2019

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Use these links to go straight to the comments from each event


23 April 2019 - Ebrook DC - Beeches Gold at Elwood

  • We would like to learn computing and access gym facilities
  • This is all heading towards Direct Payments. Some clients have elderly parents that are unable to look after their loved ones. The result of this consultation is move to Direct Payments or closure the day centres.
  • Service Users have made friends at the centres and without transport would lose these friendships.
  • One of the visions is that clients have choice, but if clients lack capacity they are ignored. There is a lack of staff for them to be able to assist clients in completing activities outside of the day centre. More staff are needed in order for the clients to have choice.
  • At Ebrook, clients have a friendship group, and they want to see their friends outside of the centre, but can’t due to transport and support. Also with Direct Payments, there is no flexibility on the amount received. Direct Payments has not gone up in 7 years and cost of living is continuing to rise.
  • These phrases and plans have been going round in circles for years now. Never any action taken on them.
  • Concerned about the future plans for the centres as there are rumours about centres being closed down.
  • Good to see that citizens will have more choice and access to services they want to access such as museums.
  • This is not a consultation. These proposals are already set in stone.
  • Happy it’s about the individual’s feelings and everything is being catered for them.
  • Passionate about meaningful activities – such as gardening.
  • Offered choice is good.
  • Independent is aware of what information is out there – can ask local staff
  • Continue coming to centre – transport to home and daycentre – got a clear routine
  • Awareness of Birmingham, plenty of opportunities do to.

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30 April 2019 - Moseley Day Centre

  • Good thing to have a choice.
  • All think this is positive and the right approach.
  • Good thing to go out to visit parks.
  • Good to focus outcomes.
  • Important to provide support and safeguarding
  • Good thing to go out to socialise – visit what’s appropriate
  • Skills support is a good thing as my child has limited skills.
  • Direct Payments should be also available for Internal.
  • Transport support needs to be addressed.
  • Want to travel and grow confidence, like shopping.
  • (Carer Mother) – Day centres give people opportunities to do things. My Son/Daughter really enjoys and looks forward to coming into the day centre.
  • (Carer Father) – Questioned the expense outlay by the city council in providing all this paperwork and throwing money at consultancy when the council in the past have been trying to save money.
  • Carer – Fears all these meetings will eventually lead to day centre closures.
  • Carer – Really speaking the staff who work at the day centre know how to care for and look after the person they care for; they know about the service users’ needs and their capabilities 2nd to us as carers. The staff at the day centres have been caring for service users for years, we do not want any changes to the day centre and how it runs.
  • (Carer - Sister ) – The Fear is by moving more activities into the community this will mean that the Government will make cuts and put less money into day centres, eventually closing them.
  • Carer – Likes the way the day centre is run, and it is a safe environment for the person they care for.
  • Carer – Day centre is where likes to be, it is a routine for him.
  • Carer – The Fears are if more services go into the community, it won’t be managed as well as day centres in that things are more regulated, risk assessed and there is a code of conduct.
  • Carer – Our own experiences previously of community based services is that they have not been as well organised as day centres and are run by people who are underpaid.
  • Carer – The thing is at one point my sister was able to be involved in enablement, then as time has moved on my sister has moved down the scale from personalised support and as she has got older she is steadily moving into the category of specialist intensive support, so getting her into gaining skills for employment would be very tricky.
  • All service users said that they really enjoyed the range of activities they were able to access at the day centre. They were excited at the prospect of being able to have more opportunities offered to them through the strategy. They especially liked the idea of seeing more of Birmingham with their friends and teachers.
  • They also liked the focus on independence, as they all said they’d like help with that. Two carers expressed how the direct payments scheme had already helped with this, and that they thought it worked well.
  • The carers also said that they felt comfortable sending the service users to the day centre as they were well catered for, but that it would be nice for them to be able to have more events on the weekends or in the evenings. Two of them said that they liked the categorisation of the strategy, as they felt it was important to show that there are different provisions for different needs. They also said there definitely should be focus on regular reassessment, and that they take in the history of what people have already tried when it comes to being enablement focused. They gave the example that their service user (was son/brother) had already tried travel training and they know it didn’t work, so wouldn’t want to push him to do it again.
  • There were a few queries about the shutting of the day centre, and wanted the focus to be on expanding the provisions the day centre already offers as everyone in the group enjoyed what they were doing.
  • One carer expressed that their service user only got 2 days a week at the day centre and this made them very bored and isolated at home, as the family couldn’t be looking after them 24/7. They queried whether this would be changed under the strategy as its focus was choice and control, and that’s what the service user wanted.
  • We like the variety of activities we have access to at the centre.
  • It’s a good place to make friends.
  • I enjoy being at the centre.
  • I would like more independence.
  • We wouldn’t want any community activities to replace existing day centre activities. We need to add to what we have not lose anything.
  • It would be nice to have more opportunities to go out, such as the gardening projects.
  • Direct payments are good, they suit people’s individual needs.
  • Direct payments help. No one should be told how to spend their day or what’s best for them. Direct payments give people that choice.
  • It would be nice to have more days at the centre, she gets bored at home.
  • The presentation says “We do not want people to only do activities inside a day centre building” this should be a choice, if service users don’t want to go out they shouldn’t be made to.
  • At Moseley Day Centre we already support service users to be more independent.
  • The idea is good but very few facilities have the specialist equipment needed, such as hoists for swimming.
  • Access to certain places can be an issue.
  • There is a lack of resources/ specialist care suitable outside of the day centre.
  • The day centre used to do this in the past but had to stop, this seems like recycling old ideas.
  • We have links with the local community; Mosley Folk Festival is always popular.
  • We used to be able to go to Edgbaston Cricket Club to watch matches; it would be good if we could do this again.
  • With the Commonwealth Games in Birmingham it would be lovely if this was inclusive for all.
  • We need to focus on teaching Life Skills.
  • Independence will be good for self esteem.
  • Independence can increase confidence.
  • Service user safety must be our main priority.
  • Approval of model - different levels of the hierarchy are extremely important to be understood – some users are very limited and cannot be independent.
  • The day centre is the one stable thing in their life – cannot cope with change, essential to maintain stability in their lives.
  • A common theme is that all users feel the day care centre is at threat of being closed down.
  • There’s a need for greater communication with day care centre staff and the council, as day care staff know clients best after their immediate families– safety and trust felt with day care workers.
  • Suggestion that all capabilities should be considered. E.g. fish and chip day, some clients are on liquid diets and can’t speak, but still see the more capable enjoying – concerns this could have a negative impact on individuals’ self-esteem.
  • Carer - Thought it was a good idea to consider other things for service users to do.
  • Carer I think the day centre is fantastic for my sister she loves coming to the day centre.
  • Carer  – Service user has improved a lot since coming to the day centre.
  • Carer – It has been difficult to get my sister into voluntary work, she did start working at a charity shop, but we found out that another person who was working there was a paedophile and later discovered the same person went to prison for offences.
  • Carer - The worry is that people who work at certain places like charity shops are not necessarily CRB checked, whereas at day centres the staffs is CRB checked.
  • Carer – There are some fears for service users being vulnerable whilst being in employment.
  • Carer – The good thing about the day centre is that we feel it is a safe place for service user to be in.
  • Carer – Is interested in getting some form of employment, she would like to work at a dogs home and or with other animals/pets.
  • (Carer Mother) - We do have issues with service user doing any type of work due to epilepsy and at any time it could be triggered, especially if stressed.
  • Service user - Would like to do other activities like swimming and woodwork but does also enjoy the activities that Moseley day centre provides.
  • Service user – would like to go out into the community but would like more support to be able to do so.
  • Carer - Service user is interested in swimming and woodwork, in the past woodwork did take place at the day centre but since the trainer retired this does not take place.
  • Carer - Service user enjoyed gardening at Four Seasons, which is Moseley day centres garden project, which operates just around the corner two roads away, although service user does not do it anymore.
  • Carer – Service user would require 1 to 1 help with certain activities like swimming.
  • Service user – would like additional development to assist to feel more confident.
  • (External Provider) – We have 2 service users who attend Moseley Day Centre, they both enjoy coming to Moseley Day Centre.
  • (External Provider) – Coming to the day centre for the service users becomes a routine for them and they don’t like the routine being broken.
  • Service user – Wants to learn how to read.

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8 May 2019 - Heartlands Day Centre

  • Service user - I love it here-I don’t want anything to change. 
  • As a carer I am very anxious about what will happen to the day centre- I don’t get a break from caring except for this time. 
  • People with disabilities are not getting the support required to complete application form, have been taken off employment support allowance even though they cannot get a job due to their disability.
  • Council not helping move people closer to family where they can get the extra support from without extra cost.
  • Money is there but we are being told that there is lack of funding, yet you can waste a lot of money on these consultation events when decisions have already been made.
  • Council want to privatise everything. Private care homes have poor quality of care, BCC services were a lot better.
  • Some people have managed to save day centres but how long for. People will be isolated if these close down as they will not have a place to socialise in.
  • Cannot get Social workers these days.
  • Support for carers is required as we are getting old ourselves.
  • It is good that some places provide transport. As a carers we have so much responsibility and so much to do this clears some time for us.
  • We do not support Direct Payment as we are too old to manage our accounts and care needs, it is too much responsibility.
  • This is a way government is taking responsibility of themselves and putting it on us.
  • Do not need that added pressure and uncertainty of what they want to do especially at this age.
  • Services that were previously working had to be frozen, service users were working as if they were employed and they really enjoyed it but this was all stopped. Now they want to bring it back.
  • Liked that the strategy focused on person centred – gave them choices. Debbie liked doing literacy and numeracy. All liked trying new things with friends here at the day centre. 
  • Please don’t close day centre
  • Opportunity to go out – Service users went out with support worker for fish and chips – really enjoyed this experience
  • Service user - Is travelled trained and can go on bus to centre
  • Like the IT here. All like music and community here at centre, but like to experience what’s out there, with the support.
  • Like model because it help people to improve and better themselves

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9 May 2019 - Elwood Day Centre

  • It was honest presentation from Presenter.
  • Yes, it is a good idea to look at individual people because of their different needs. Everyone is different.
  • People are nervous but at least it involves mixed people.
  • Nice to have a group here and in this centre and to look at our needs. I can’t use computer as much.
  • It’s about the ability if my daughter cleans the bedroom she would do it to her ability.
  • I depend on myself and have a sister to do the shopping; I came here to do activities go home and cook etc.
  • My son would not say anything at home but opens up when attending the centre.
  • I am here I am open but at home I am more of quiet person.
  • I like the idea of going to different centres and reading and writing is needed. If someone teaches in the group would be useful.
  • I could do touch type on the smartphone and use the computer. But find it difficult to manual read and write.
  • Would be nice for separate groups of male and females to interact and form ideas.
  • People are grateful this service is here and in the country.
  • I like coming here and talking to the centre groups and being involved.
  • These centres are ideal for everyone’s needs.
  • All service users agreed they are made unaware of the ‘choices’ they have, and wouldn’t even need to start, need assistance choosing
  • All agree that choice is crucial, and personalised activities make their days more enjoyable
  • All agreed that daytrips to other daycentres e.g. for the morning, to meet new people, and would like if other daycentres provided information on their activities as this could improve choice as to whether to go there for a few months instead due to preferring their scheduled activities
  • Some users are aware of a staff shortage which restricts them being able to go on daytrips and outings they would perhaps like to go on
  • Agreed they don’t feel a sense of local community, unaware of community events, see the daycentre as their community. 
  • Accessibility to toilets is essential. 
  • In terms of independence, some found that assistance of staff is crucial. 
  • All agreed that transport is another key factor. 
  • Going out in smaller groups is more enjoyable as they get more time and their needs can be properly catered for as opposed to going on a day trip in a large group. 
  • Expanding activities e.g. disabled swimming – users understand it’s not appropriate for everyone but those able said it would be really enjoyable – some are able to go with family member’s, but others do not have these networks. 
  • Transport is a common concern. 
  • All see the daycentre as a lifeline relief, and feel lost when it’s closed e.g. over Christmas. 
  • Main suggestion was that service users want to communicate with other centre users, to build friendships and closer links with the daycentres so they can work together. 
  • Model - Consideration of needs is crucial. 
  • All feel that enablement is encouraged at the daycentre, and know they can ask for help when needed.

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15 May 2019 - Harborne Day Centre

  • At Harborne R.C, the service users value the sense of community they enjoy at their day centre, the support from the staff team and the break it provides for themselves and for their carers. However, many feel that the principles of greater choice and services in the community have little practical application to their families given the complexity of their needs.
  • Loves the activities at the day centre
  • Sign language
  • Personal budgets/direct payments - Most carers feel these could be a source of anxiety, needing extra time and support. Additionally, some people mention how the personal budget can fall short due to the higher weekend rates charged by some agencies that are not being taken into account. Many do not want direct payments/ personal budgets to be imposed upon them. These same carers are unclear about how personal budgets/direct payments work.
  • You need to be realistic about these individual capabilities!
  • Days spent at home with only a PA for company is not good for the service user’s mental health- they need to be in the company of peers and others that they identify with.
  • Service users will be forced to spend long periods of time alone with the PA either at or in the community. This is not good for the individual’s health and well- being. The Day Centre provides an opportunity for the service users to engage with others and to have trained and qualified staff providing meaningful activities - This is VALUE FOR MONEY!
  • Service User suggested undertaking a race to raise money to keep the day centre open and other money raising events. The Service user loves Harborne Day Centre and has been coming for 10 years, she attends 5 days a week and it’s a way of socialising and taking part in different activities. She has made friends that are more like family, she loves it here.
  • Would like to play golf
  • Would like training - reading and writing, enhanced training, cooking, baking and keep fit.
  • Want to continue with the activities they do at the day centre
  • Would like to earn some money
  • Get excited to come to the day centre
  • Friends at the day centre are like family
  • Without the day centre I would just be at home with my mom
  • Feelings of happiness when attending the day centre, enjoys the activities
  • Would need additional support to access outside activities within the communities
  • Would like to go swimming
  • Would like to go on a bouncy castle
  • Take part in aromatherapy at the centre
  • Get to work in the kitchen at the day centre
  • Would like to work in a shop
  • Would like to run own business at the day centre and earn some money
  • Happy with knowing what and when things are happening, having routine and familiarity
  • People (service users) may look able, but have to consider to consider their mental ability
  • People look vulnerable.
  • That’s what this consultation is about
  • There should be no savings as all the money should be spent on services
  • The powers that be don’t care about Carers, we are the second generation carers. Some carers are in their 80’s and 90’s
  • If anything happens to us (carers) people will have to go into residential care which will cost you (BCC) more
  • I need to go to work. My son is at university, but he will have to take on debt to manage. I look after my mom and sister. I didn’t ask for this
  • Shows how much the government appreciates you if get £66 per week. I don’t have any money
  • Whatever you decide will have a big impact. If the day centres close people (carers) will have to put their kids in care which cost even more
  • We’ve done this for a long time, when we want something out of the pot, there is nothing for us for example no respite
  • Son with Downs was out in the community, approached a child and misconceptions prevailed about his intentions/actions
  • We have to train the public
  • Going out in the community, people can be rude. Here people don’t get that, so why change it
  • Activities are geared for them
  • Need a building for safeguarding
  • Day centre is our lifeline
  • We have told you this over and over
  • If this place closes down, my son will be uprooted again for the third time
  • Think about the people coming out of schools. They are much more open. Think about their needs
  • I went on a trip with and group who were just enjoying themselves. A man nearby was becoming increasingly irritated by the ‘noise’. He came up to me and said “if they’re not perfect, you should kill them at birth”. I replied “you’re not perfect”
  • Citizens is not the right term
  • Cerebral Palsy used to be called the Spastics Society
  • Everybody at the day centre are given activities to match their abilities. Everything is structured here to their abilities
  • Disabilities is still a vulnerability. We have seen people out with their PA’s and they are just not interested
  • If they don’t have regular staff they won’t understand our kid’s needs, that’s why building based is better
  • Victoria School is second to none. It is a very good school
  • Will need a lot of extra staff to support people
  • There’s only so much they can do (need variety of activities) can’t do the same thing all the time
  • What you’re doing is putting the Carers into a position where they have to give the people skills
  • If people have the ability (to get a job/employment) let them do it
  • The people we care for have all deteriorated in the last ten years
  • All the Carers agreed that they were not in favour of Direct Payments
  • Have to think. If my son had a PA who was ill (on holiday etc) and didn’t come, my son would go ballistic.
  • Direct Payments works if you have a good PA. If my son doesn’t go out, he’d go ballistic. He has to go out every day
  • The more people who take Direct Payments, means there is less need for day centres
  • Young people leaving school are directed to taking Direct Payments
  • Yes, therefore artificially weeding out day centres
  • The £3 increase in PIP payments was for care. Then BCC put up their day centre costs by £3
  • Good to get people in the community, but it’s not going to work. It’s not accessible for people with disabilities
  • Differences between adults and children (all resources are put towards children’s services)
  • Leader; Deputy Leader; Waste Collections. They may not know what other do. Then proposals are reviewed, then voted on. That’s absolutely disgusting
  • It’s disgraceful. They need to “walk in our shoes”
  • Good job Scrutiny has sight of this otherwise it would just be bulldozed through. Scrutiny is good for us
  • Why don’t they send someone else in so we can educate them. Send the top Boss in so we can talk to them
  • Hopefully in ten years’ time we’ll still be sitting here in this day centre
  • The people at the fairways are more friendly, Ive been waiting 5 months to hear if I can go back
  • The information pack is good and easy to follow
  • The presenter was good-Sonia
  • I would like to recommend Harborne day centre to other carers loved ones to attend
  • The day centre enables me to get a break from my caring responsibilities
  • Many services are not listed on the council website and its not easy to navigate & understand
  • I love it here - I don’t want anything to change
  • As a carer I am very anxious about what will happen to the day centre- I don’t get a break from caring except for this time
  • 2017 this was mentioned in guidance documents
  • If you close the centre will you claim this was the consultation to allow this.
  • I was at consultation at Stirchley baths, I know you are plan to close centre.
  • The council are back stab – I’ve been a labour support but waste of money
  • Is Harborne Resource Centre going to be closed, I want the centre to stay open.
  • The questions asked by the presenter about closure of centre were not answer with clarity.
  • On page 7 of the consultation pack you talk about moving away from traditional building services – this means closure
  • If this centre is closed - I will take legal action.
  • You want to sell the land to developer, you need the cash – the centre must stay open – my son has best service.
  • Categories of care – everyone has different levels of need
  • Not everyone is able to get into employment
  • Disagree with the strategy, believe parents of service users should have more of a say and the ones with special needs should receive greater consideration
  • Change is not good for some service users
  • Cutting of services – causes huge issues
  • Concerns as cannot afford private care
  • Haven’t seen any changes in strategy over many years – wants to see money being put to use
  • Friendships made at the centre are so valuable, without the day centre there would be no quality of life for users at all.
  • Worried about centre closing down.
  • Lack of social worker support in terms of face to face reviews
  • Person centred – good thing, but needs to varied.
  • Give opportunities to travel
  • Enjoy Knitting and craft making
  • Enjoy Outwork – previous SU were getting paid to do some work
  • Enjoy Shops – going out
  • Enjoy Therapy and Support
  • Enjoy Shopping
  • Enjoy Gardening Centre
  • Trust getting used to new staff
  • Change is sometimes difficult to handle
  • Carer respite is important
  • Model is ok as it the strategy
  • The majority of people in the discussion were parents of individuals that attended Harborne Day Centre and expressed how safe and secure they felt their child was at the centre. They said that the most important thing they found about the centre was the opportunity for service users to make friends. The centre gave them a good quality of life and meant they could be with and around the people they wanted to be with. A service user spoke and said that they really enjoyed the day centre and wanted to go there as much as possible. She expressed that she already got lots of choice of activities and gets control over what she wants to do. They all felt that the service the day centre currently provides helps meet all the 6 points of the strategy. It stops users from being in isolation and gives parents and carers much needed respite.
  • The discussion then moved onto the topic of direct payments and what they can be used for. Many of the parents recognised that direct payments may be helpful to some, but that they were being pushed onto them. They also said that as they couldn’t use them to fund the day centre, there wasn’t much point in them using them. Also if they were made available for the day centre, it seemed likely they wouldn’t be able to be used to fund all the days there that the user needed. There was talk about financing personal assistants, and that brought us to the question of whether personal assistants would be fully trained to tackle all problems if taking service users into the local community. They said they felt safe with them at the centre, but not so much outside of it without the centres support.
  • The parents and carers discussed how they had been having meetings like these for many years, and with these meeting always comes the fear of the day centre closing. They felt that the council didn’t listen to what the people want, and are constantly relooking at the strategy and presenting the new information.
  • On paper the strategy seems to make sense. It has be able to recognise the difference in individuals needs. The model separates people into flexible categories – (Obviously these are implementation questions, however they were raised). Fear and uncertainty about the future was apparent. The idea of using external providers raised a question (noted above) about the security of them and if they were regulated. Needs to be some quality control done before people can be put at ease enough to send their service user to them.
  • General opinion we got from the Service Users we spoke with were that they love coming to the Day Centre, as there is lots of choice of activities to do and they get to meet friends they have made through going to the Day Centre and socialise a bit.
  • Service users were generally happy with the Centre and the staff who run it and would not change anything.
  • The Service offers a choice of a lot of different activities for the Service Users to participate in throughout the week. However there are limitations on the types of activities that can be offered by staff, sometimes for practical and/or health and safety reasons. Since a lot of attendees at the Day Centre have both physical and/or mental health disabilities. Therefore activities have to be thought through properly and adaptable for the needs limitations of Service Users.
  • Staff arrange outings too, such as coffee mornings they can go to in groups with the Service Users. Or sometimes they will go out for pub lunches or fun activities like bowling with Service Users.
  • A lot of the Service Users attending the Day Centre absolutely need and like structure and to know what they are doing and when on any given day. Change can sometimes upset them, if activities get moved around or cancelled at the last minute.
  • Any new activities have to be integrated and brought in slowly, and staff plan all activities a week ahead of time. So that everyone is aware and knows what activities they will able to take part in the following week at the Centre.
  • Service Users are encouraged by staff to do as much as they can for themselves and they like to be active on the whole and stimulated, and involved in tasks and games.
  • For the most part Service Users do not go out from the Day Centre alone and are always accompanied by staff members where required and needed, as appropriate to the person’s care needs and requirements.
  • Service Users come and go to the Day Centre on different days throughout the week and some more regularly than others.
  • For some it is just simply the social aspect of coming to the Day Centre that they like as they meet friends they have made there.
  • Sometimes family members of the Service User come along with them to the Day Centre too and they get to know the staff, and over time the Service becomes almost like an extension of general family life really for their relative.
  • This Day Centre is very important to the people who attend it.
  • Councils understand what you need, we need our day centre for respite for parents, brothers, sisters and carers
  • Also you say about work well all service users are not capable of work that’s why they are at Harborne Resource Centre.

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16 May 2019 - Fairways Day Centre

  • Want the opportunity to use DP for appropriate facilities, and to increase their independence
  • Training and education on direct payments is necessary, change is difficult for some and so need to be educated appropriately for a smoother transition
  • Younger people with disabilities should be transport trained earlier
  • Important to keep the mind occupied – need to go out more in the community, attend daycentre to do activities they cannot otherwise do at home
  • All agreed that the older generation are forgotten about and there’s too much focus on the younger generation – see this as unfair, whilst still able elderly need occupying, and there needs to be more activities for the elderly
  • Good idea to be future focused
  • Questioned the practicality of the principles proposed
  • Need more funding for activities
  • All agreed the daycentre is a lifeline and the main form of socialisation in their lives – otherwise would be sat at home doing nothing
  • More facilities should be made available e.g. for wheelchair users, lower level kitchen surfaces to participate in cooking classes – accessibility is essential, especially for safety
  • Want equal access to all day centres, service users visited another day centre and were told they were not suitable, they felt unwelcome and vulnerable, oppose to how attending a day centre is supposed to make service users feel
  • Being able to come to a Day Centre along with a family member who also access this service.
  • Staff who transfer and cover a variety of centres need to have the skills to support the Service User.
  • Need numbers to allow for better and wider choices
  • Previously went to Oldbury Port way Centre – did use to try their large hydropool – lack of support at Fairways to support this option.
  • Need numbers to allow for better and wider choices
  • Needs to be operated at its full potential, require more service users, limited activities due to decline of service users.
  • Need more referrals at Fairways
  • Strategy and model – positive stuff, so excited that Birmingham are going through
  • Happy to come to the centre have been coming here for nearly 5 years.
  • Day care provides socialisation even for those who live independently
  • Feels like it is engineering the closure of day care – and that this has already started.
  • Individual needs aren’t always acknowledged by the system, e.g. respite and lack of provision
  • BCC decision making can have a significant impact on family members.
  • Have been to college – had to learn to read and write again after brain injury.
  • I (as a carer) would also like to work.
  • Enjoy painting and drawing and decorating ceramics
  • Like playing dominoes
  • Enjoy cooking and learning new recipes which I try to do at home
  • Enjoy going swimming, shopping and the cinema
  • Used to use buses but can no longer access them due to type of wheelchair I use.
  • Would like to earn how to make things
  • Would like to try jigsaw puzzles
  • Would like to go to church but find it difficult to access unless I get a lot of help
  • Direct Payments are not for everyone but I feel as if I am always being pushed to take one.
  • A service user at The Fairways, and he and his wife were in this small group discussion. His wife brings him to The Fairways 2 days a week, but have also found another place to take him privately that the council do not fund. Service User has dementia, but said he really enjoys going to the day centre, and his wife uses it as respite and it allows her to get on with daily tasks. He said he enjoys doing word searches and using the computer, but does have a bigger range of activities at private centre.
  • People felt that the presentation lacked clarity. They felt unsure about what ‘accessing the wider community’ actually meant. They felt that they didn’t actually get an understanding of why the council were choosing to look at Adult Social Care now, and how this model of working I different from the current one. They also raised the question of the council budget. The Budget suggest a £2.1 million saving in Adult Social Care, and as it coincides with this consultation project it becomes hard to not see it being about the closure of services (specifically day centres).
  • The day centres give the carers respite and the opportunity to have their own lives. Therefore the carers as well as the service users must be central to this strategy.
  • Publication of the material surrounding the consultation and strategy etc was criticised, as Service User cannot access the internet. Without the day centre she struggles to get information. They all felt the council needs to be better at getting information out there to people without internet access. It’s hard for people to know what’s available. Perhaps they should use local notice boards etc. Furthermore, the council have been very slow with posting updates regarding the consultation project. It took many weeks for frequently asked questions to be put online. They also felt that the FAQs mainly answered questions for service providers, and didn’t look at the public/service user views – they still can’t find the information they need.
  • Whilst the premise of accessing the community was liked, it was thought to be too ambitious for this strategy change. There’s a huge number of things that would have to be changed massively to allow service users to operate in the community – booking specific taxis, making sure a guard was ready to put the ramp down at train stations etc. Furthermore, outside of the day centres often service users can’t access the community due to their needs. The day centre becomes their community.

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23 May 2019 - Hockley Day Centre

  • We are parents and carers for our son and support him like take him out swimming and other activities.
  • Going to respite is hard because so much process to go through.
  • My son comes to centre different from QAC College, here is friendly staff, made friends, his like a family member. Part of their interaction.
  • Money is not the point the caring part is the important part. Social Worker would not know their background
  • We all got to put up with it.
  • We got the rough edge of the stick, worried about what is going to happen.
  • Feeling uncertain at the moment.
  • A Social Worker would not be able to do carer role. Hockley Day Centre is like a second home.
  • Me and my wife have a difficulty going on holiday with our son and manoeuvring him around.
  • It is worrying what would happen in future.
  • I am happy coming here it’s a break away from home.
  • The presentation was too positive; my son would not be able to grow plants.
  • Worst case scenario is closing of the centre. We don’t like help we are quite independent. Council cuts hours and closes centre. It’s good we have a voice.
  • It’s like having a baby for 50 years and a lot work has been involved. If it wasn’t for this day centre we would not cope.
  • We appreciate places like this, centre on Aldridge Road closed, we fought for it by protesting years ago. But it closed.
  • There are groups who would not be able to come across as articulate like me.
  • Carer - More support for people to find a PA if they have a DP
  • It would be nice if BCC interviewed people who want to become PA’s
  • Good to have BCC support in choosing a PA
  • Carer – Everything mentioned in the strategy is happening here
  • Carer – I have three adult (disabled) children at home. I wouldn’t want DP because they are used to coming to the centre, in a routine and it is about not taking away their independence if they have a PA. For example they do some of their personal care and chores around the house
  • Used to send them to respite, but “I cried when they left” so didn’t send them back
  • Carer – Options are the key thing. Should be given choice.
  • Sometimes staff are busy with administration and are not spending enough time with SU
  • It is more important to spend time with SU, as opposed to completing paperwork.
  • Carer – My son likes coming here, it’s like a second home
  • SU – I like working on the till; iPad; numbers; Maths; reading and writing; Makaton; disco; music; I make my own tea and coffee; knitting
  • SU – I like cooking and disco dancing
  • Staff/SU – We enable SU to help themselves for example making a cup of tea
  • SU - Staff like to make tea; washing up; carrying messages and communications; taking SU to their bus.
  • Staff – Shirley is like another member of staff, very polite to other service users.
  • She likes cooking; going to the gym; football and bikes
  • Carer – Adult kids like to do housework; loves everything at the centre; comes five days per week
  • Carer - Do you have access to other services for example Health? Having access to this could help SU to feed or drink by themselves
  • Staff/SU – Likes to come here to socialise with friends
  • Staff/SU – Likes sport, cleaning dining room
  • Staff/SU – Likes to make fish cakes
  • Health professionals; Community Nurses; Social Workers; Occupational Therapists; come to the day centre to give an overview of what they do
  • Carer – Would like an open day at the centre so perspective users can see what it’s like and talk to current users at the centre
  • Carer/Staff – Independent advocate for SU to ensure they have choice
  • Give SU the opportunity to use IT. Especially if a SU has no vocal communication skills, could use IT as a communication aid. Need access to fund this IT application
  • Carer – Bike riding gives people exercise
  • The centre is switched on about people (SU) with complex needs
  • Carer – Change here (at centre) could impact their home life at home
  • Carer - Not enough education in schools about disabled people. Young people in schools are now very accepting, people of my generation are not
  • Carer – Need the budget to do this (enablement)
  • Carer – Take my son out of his comfort zone and he’ll get upset
  • Carer – Centre’s that have been closing, people are just forgotten, talk about….., they are not listening
  • Carer – Decision makers are not in the real world
  • Carer – Other services have been closed. In the end, it all boils down to budgets
  • Carer – I can only talk about my situation, this centre is their life
  • Carer – This has been going on since 2012. They don’t care about people. They didn’t listen when we had a consultation in 2012. They just throw people to the wolves.
  • My son will be devastated
  • Carer – If only they listened at the top
  • Carer – But they don’t listen
  • Carer – Extra care schemes are not practical for us
  • Carer – They don’t know our lives, they don’t live our lives
  • It’s a good thing that BCC are improving with the proposed strategy.
  • Daughter enjoy, disco, arts and crafts, community centre, get choice, like it here! Made friends – happy – grown in confidence.
  • Cinema, Art and Craft, grown confident, going to the park- when shopping has an understanding of the food he likes. Finds it difficult as carer is 80 years old caring for 3 adults with disability.
  • Number counting, till work
  • Model is ok.
  • Inclusion in control of finance (DP)
  • Empowerment by inclusion
  • Given my voice power by making people listen
  • I worry that if the service is not run by the Council, it will be just about making money
  • Carers may be affected by changes to the day services (finding time to care for the person – work/carer balance)
  • Benefit issues when person cared for changes address
  • The lady I care wants to do more drawing. She enjoys this can the centre do more competition.
  • We need more toilets, more refreshments at the centre. There is more people with disabilities coming here. Centre needs to be upgraded.
  • There is more people attending who use wheelchairs, need to make the service around them
  • There needs to be more staff top support people. There needs more time given for positional change.
  • In terms of involvement with local community, felt that aspects of this already exist
  • Friendship and networking are crucial at daycentres
  • DP – does this impact accessibility to wellbeing? Users have concerns with DP
  • Felt the presentation was unclear – recommend questions being allowed throughout for clarification. Wish for a more open discussion.
  • All users said they enjoy the daycentre, especially stimulating activities such as cooking, painting
  • Socialisation – mixing e.g. funfair for people with learning disabilities
  • Daycentre adds activities to service users lives that they wouldn’t be able to do at home
  • Users like a good variety of activities
  • Networking to find new facilities to use
  • Movie nights, going out for meals – give carers some respite
  • Independence – users are often underestimated. Staff can see huge progress in users from beginning to now e.g. washing hands before meals, these are transferable skills from the daycentre to home.
  • Independence – voluntary work/employment
  • Socialisation with other daycentres to get to know other users
  • Proposal sounds positive, like the idea of taking users to community, increases choice and freedom.
  • Still a lot of prejudice and hostility towards disabled people in the community. If we go out we have to wait in the corner at restaurants.
  • There are no resources in local area for people to make use of.
  • Need to take into account the impact that change can have on people and how unsettling it is.
  • Would go to the gym if they had appropriate changing facilities but they don’t. This is the case with a lot of places.
  • Need more staff to put all of this in place. Can’t enable people all at once.
  • What has gone before doesn’t instil people with a lot of confidence.
  • Do the people who make the decisions have contact with service users? It’s our world not your world. This is our everyday.
  • Like the strategy and the ideas. Think this will make things better for people.
  • A lot of what was said is already happening at the day centre. Son who uses the centres has learned a number of skills, gets to choose from a variety of activities and is supported to go out and about. The centre go out for walks, rock climbing and sailing. They also have adapted bikes that people can use. Another important thing is that he has friends at the centre. Appreciate the support the centre provides – only care support received (carer is elderly and on her own) is from the day centre. Son attends 5 days a week.
  • This process has been done before with older adult day centres. People had their say but the centres were still closed. Centres have been closing on a large scale. People have been forgotten and the council is not listening. The cabinet that make the final decision are not in the real world. People at the top don’t listen to what we want. It doesn’t matter what is being said in the consultation.
  • Wouldn’t be interested in a direct payment – used to how it is which is much more convenient.

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